Friday, October 4, 2013

Tyler Update!

Here's a little update with where we are with Tyler since many have asked.  Tyler's EEG came back normal, so that's good!  If you remember, we were getting evaluated two places:  Brain Balance Center and through a neuropsychologist.  We completed the evaluations with Brain Balance and had his evaluation meeting last week.  The range of information we learned about Tyler in a two-hour meeting was phenomenal.  It literally felt like all the puzzle pieces we had scattered through the years came together to form a gigantic puzzle.  

Tyler had his neuropsychological testing done.  It was a 3 hour formal testing which ultimately would help diagnose him if that's what the end result is.  We will have a results meeting for that on October 17.  That meeting could bring on other meetings or appointments. I'm not entirely sure what the outcome will be.  My guess is that they will say he has ADHD and possibly something else.  They could always suggest another neurology visit to rule out other things, but at this point I don't feel like that's likely.

So, knowing what we know, we've decided to move forward with a decision on how to help Tyler.  I enrolled him in Brain Balance.  He will start the center program on October 7.  He will go Monday/Wednesday/Friday from 5-6 pm.  Josh will be able to take him all but three times a month which is when I'll have to leave work early to take him.  This is a 12 week program with the possibility of extended time if needed.  There is a substantial home program that we will start tomorrow.  I have a binder and a DVD to review!  Life is about to get REAL fast.  Did I mention we cut TV and video games during the week now too?  This program limits screen time to 1 1/2 hrs a day.  So, I'm saying this so my neighbors know to tell Tyler "no" if he sneaks over and asks to play video games for extended amount of hours :)  And, since nutrition is a large part of this, he had a blood draw last Wednesday after school to test for food sensitivities.  I will be so interested to see those results!  He's been gluten free for almost two months now.  It will be interesting to see if gluten is even on his severe list.

Thanks for everyone's questions, concern, help, and understanding during this stressful time.  It's not only been stressful because of what we've seen and dealt with in Tyler but also because of the timing, countless appointments, evaluations, and money we've invested!  And it's not over yet! 

I have really huge hopes for Tyler at Brain Balance.  We've learned of many friends whose kids have gone there, and the first thing out of their mouths is always, "You have no idea.  It's like witnessing a different child."

If you are interested, My Carolina Today has been doing a segment on Brain Balance.  This was their final segment which was aired yesterday.

http://www.wncn.com/category/255111/my-carolina-today

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