Here's
a little update with where we are with Tyler since many have asked.
Tyler's EEG came back normal, so that's good! If you remember, we were
getting evaluated two places: Brain Balance Center and through a
neuropsychologist. We completed the evaluations with Brain Balance and
had his evaluation meeting last week. The range of information we
learned about Tyler in a two-hour meeting was phenomenal. It literally
felt like all the puzzle pieces we had scattered through the years came
together to form a gigantic puzzle.
Tyler had
his neuropsychological testing done. It was a 3 hour formal testing which ultimately
would help diagnose him if that's what the end result is. We will have a
results meeting for that on October 17. That meeting could bring on
other meetings or appointments. I'm not entirely sure what the outcome
will be. My guess is that they will say he has ADHD and possibly
something else. They could always suggest another neurology visit to
rule out other things, but at this point I don't feel like that's
likely.
So, knowing what we know, we've
decided to move forward with a decision on how to help Tyler. I
enrolled him in Brain Balance. He will start the center
program on October 7. He will go
Monday/Wednesday/Friday from 5-6 pm. Josh will be able to take him all
but three times a month which is when I'll have to leave work early to
take him. This is a 12 week
program with the possibility of extended time if needed. There is a
substantial home program that we will start tomorrow. I have a binder
and a DVD to review! Life is about to get REAL fast. Did I mention we
cut TV and video games during the week now too? This program limits
screen time to 1 1/2 hrs a day. So, I'm saying this so my neighbors
know to tell Tyler "no" if he sneaks over and asks to play video games
for extended amount of hours :) And, since nutrition is a large part of
this, he had a blood draw last Wednesday after school to test for
food sensitivities. I will be so interested to see those results!
He's been gluten free for almost two months now. It will be interesting
to see if gluten is even on his severe list.
Thanks
for everyone's questions, concern, help, and understanding during this
stressful time. It's not only been stressful because of what we've seen
and dealt with in Tyler but also because of the timing, countless
appointments, evaluations, and money we've invested! And it's not over
yet!
I have really huge hopes
for Tyler at Brain Balance. We've learned of many friends whose kids
have gone there, and the first thing out of their mouths is always, "You
have no idea. It's like witnessing a different child."
If
you are interested, My Carolina Today has been doing a segment on Brain
Balance. This was their final segment which was aired
yesterday.
http://www.wncn.com/category/255111/my-carolina-today
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